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米国の遺伝医療,遺伝サービス,及び遺伝教育の現状


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Title: 米国の遺伝医療,遺伝サービス,及び遺伝教育の現状
Other Titles: Present status of the genetic counseling, genetic services, and educational system for human genetics in United States: An inspection report
Authors: 近藤, 達郎 / 松本, 正
Authors (alternative): Kondoh, Tatsuro / Matsumoto, Tadashi
Issue Date: Jun-2003
Citation: 長崎大学医学部保健学科紀要 = Bulletin of Nagasaki University School of Health Sciences. 2003, 16(1), p.31-35
Abstract: 長崎大学医学部附属病院遺伝カウンセリング室が開設してから約3年が経過している.当室は長崎県が中心となっている「遺伝相談システム」でも重要な役割を果している.しかし,我が国の遺伝サービスはまだ動き出したばかりである.日本に最も適した遺伝サービスや遺伝教育がどのようなものかを考えるために,先行している米国の状況をワシントン大学を中心として見学したので報告する.米国では,一般的に遺伝カウンセリングに際し,臨床遺伝医及び遺伝カウンセラーの役割が大きい.さらに,ソーシャルワーカー,看護師などが入り込み,チームとしてカウンセリングに臨んでいた.臨床遺伝医,遺伝カウンセラーになるためのプログラムは数多く存在し,卒業後,資格試験に合格して専門家として勤務が許される.遺伝教育としては,小学生から教育できるシステムを創作していた.日米間では,当然のことながら,家族関係,杜会環境など差異が認められるため,米国の遺伝サービスのシステムをそのまま日本に持ち込むことには無理がある.しかし,1)情報としてグローバル化した現状を加味し,2)日本の歴史,文化,宗教,教育に即したものを作って行くためには,米国のシステムも参考にする必要があろう. / The Genetic Counseling Unit in Nagasaki University Hospital has been opened for about three years. This unit plays an important role for "Genetic Counseling Net-work System in Nagasaki Prefecture" planed by Nagasaki prefecture. However, the genetic service system in Japan has been just started. We here report about the present situation of the genetic counseling system in some Universities such as Washington University in United States for thinking about the most suitable Japanese system of genetic services including counseling and education in human genetics field. The clinical geneticists and the genetic counselors are essential and very common for genetic counseling in United States. Further, social workers and nurses join sometimes as members for genetic counseling. There are many educational programs for the clinical geneticist or genetic counselor. After passing the examination of the American Board of Medical Genetics or the American Board of Genetic Counselor, clinical geneticists or genetic counselors are permitted to work as specialists. The education experts in Washington University have made "The Genetics Project and the High School Human Genome Program", and are teaching genetics to the students of the elementary school to high school. It is difficult to apply the American system of the genetic service to Japan directly, because the Japanese family style, culture, religion and social environment are quite different from those of United States. However, it will be important to learn the American system of genetic examination and treatment, genetic services including counseling, and the education of human genetics to establish the suitable Japanese system.
Keywords: 遺伝カウンセリング / 遺伝教育 / 米国 / genetic counceling / education of genetics / United States of America
URI: http://hdl.handle.net/10069/18000
ISSN: 09160841
Type: Departmental Bulletin Paper
Text Version: publisher
Appears in Collections:Volume 16, No. 1

Citable URI : http://hdl.handle.net/10069/18000

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